A Durham family has been given an apology and $10,000 worth of ad money after a photo of his son was rejected for being “scary and gory.” Fox Carolina News reported the story September 12.
Kevin Bond, the father of Hudson Bond, said in an interview
“It’s kind of the roller coaster, the lows and the highs. When I got that letter it was pretty low, but we’re riding pretty high. There’s a lot of people who care about my son and that’s definitely heartening.”
Kevin has decided to use $5,000 of the ad money to help another child. Four-year-old Eliza O’Neill of Columbia, South Carolina was diagnosed last July with a rare terminal genetic disease called Sanfilippo Syndrome-Type A.
A donation webpage set up for Eliza describes her condition
“Eliza and other children with this disease are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teens.
This disease affects both genders, all races, all countries and continents. It is everywhere and the world needs to know.”
Meanwhile, in Durham, the race is on to find baby Hudson a new heart. His condition is so dire, it’s believed Hudson suffered a heart attack even before he was born.
Right now, Hudson is living on borrowed time with an artificial (Berlin) heart, with the hope a real heart can be found.
To help offset the costs, the family turned to the Children’s Organ Transplant Association to raise the money they need to pay for his surgery. It’s likely Hudson will have medical expenses for the rest of his life, due to his heart condition.
The family expects expenses to exceed $125,00 just for what’s needed at this point in time. Click here if you’d like to make a donation towards Hudson’s care.
You can follow Hudson here on Facebook.